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Me, Myself and Epilepsy PDF Print E-mail
Story by Jennyroo
Health & Wellness

 
I was diagnosed at 17 with unknown epilepsy; meaning there is no reason why I have it. I have no tumors, worms, trauma or anything that could have caused it.I just started having the worst seizures possible a few times a day for no reason. WHAT! I was supposed to be graduating and moving away to a big college when all this happened. So what did I have to do? I had to stop driving, stop going to school (which was a mistake), stop taking baths (which is the only way I relax). Plus the worst part is I can't be alone. One time I was alone and a neighbor found me in the middle of the road. I had tried to get help in the middle of a seizure. 

 

epilepsyMy whole life my mother taught me one thing and that was never to depend on ANYONE. Now everything I do and everywhere I go I need help and I have to depend on everyone. I had dislocated my shoulder due to a sports injury at 15 years old and now every time I have a seizure my shoulder pops out. They can only fuse my shoulder together to make a permanent fix but at the same time I am trying to finish school and take care of my teeth that the anticonvulsant medication has messed up. I have to take care of my family and myself.

I am looking for anyone who knows about epilepsy and how controlling and depressing this disease really is. Because it's hard to find people to understand ALL of my  issues in just trying to live a fulfilled and successful life!
 

Comments  

 
0 #4 AnnaS 2011-08-12 13:29
I was diagnosed with grand mal seizures when I was 12, I am 25 now. I apparently had petite mals for several years before. The doctors don't know why I have epilepsy however my father and aunt both suffer. I know how difficult living with epilepsy can be however I cannot compare my condition to yours. I don't need constant support but my seizures happen about every 3-4 months. I found that trying to live life as normal as possible is the only way I have been able to cope. I will pray for you and hope for circumstances to improve. Hold on there Andy there is still hope.
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0 #3 EPILEPSY — Wilma 2011-05-02 18:12
I have Epilepsy too. The doctors don't know what causes mine either. I've probably had it all my life but it came full blown at age 31. I worked until about 7 years ago. I can stay alone but mine is strange, I am wide awake and I talk and move around. I just don't know what to do or say someone has to tell me. I don't have any independence anymore it is no fun but you learn to live with it. It will be ok, maybe one day you and I can get a medicine or combination of medicines to work. I just look at it like I'm lucky, it could be a worse illness. Good Luck
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0 #2 RE: Me, Myself and Epilepsy — Tracey 2011-04-21 07:09
My brother suffers from seizures and the experts don't know why like in your case. They did a bunch of tests on him but still can't pin point what's causing the seizures. He had his first seizure when he was just four years old, it was really scary because we didn't know what was happening. He's on medications and is doing better now but can never be left alone either. Good luck to you sweetie...
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0 #1 epilepsy — Andy 2011-04-21 06:56
You are not alone. I also suffer from epilepsy and have since childhood. Just try to live as normal life as possible and hopefully one day they'll have a cure for us. I'm in a support group and it helps talking about the frustrations of having this condition. Take care, Andy
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